Sickle Cell Disease (SCD) is a group of inherited red blood cell disorders. According to the CDC, approximately 100,000 Americans are affected by SCD; SCD occurs in 1 out of every 365 black births, and one in 13 black babies is born with a sickle cell trait. Thanks to advances in genetics and hematology, people with SCD are living longer, but much is still unknown about the intersection between SCD and reproductive health.
The Jane Fonda Center is partnering with Emory’s Department of Hemetology and the Grady Comprehensive Sickle Cell Center, which is the world’s first 24-hour comprehensive primary care clinic for adult patients with sickle cell syndromes. The Center is conducting a mixed methods study with this patient population in order to publish qualitative data on reproductive outcomes for people with SCD. The study will provide a narrative voice to the experiences of living with Sickle Cell and the data will determine opportunities for changes in reproductive counseling by clinicians.